2019 TASH Conference has ended
Each year, the TASH Conference brings together our constituents to share resources and success stories, learn about field-driven best practices, and network within a community engaged in shared values. The Conference is attended by passionate leaders, experts, and advocates from every corner of the disability community. Conference attendees are influential in their fields and communities, and play an important role in the provision of services and supports for the millions of individuals and organizations around the world; and include professors and researchers from leading institutions; those involved in local, state, and federal governments and public policy; special and general educators, and school administrators; self-advocates, adult service providers; students, family members, and many others.  This year’s conference theme, Building Diverse and Inclusive Communities, reminds us that equity, opportunity, and inclusion relies on the input of broad perspectives and experiences.
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Saturday, December 7 • 2:15pm - 3:05pm
Improving Person-Centered Planning and Thinking in Increasingly Diverse Communities Filling

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The United States (US) is a diverse country, becoming increasingly diverse over time. As members of culturally diverse communities and all communities, people with disabilities must be able to choose the communities to which they belong and to be truly a part of those communities. This requires that we begin by listening to people with disabilities and understanding what they want for their lives. Many people with disabilities rely on formal supports systems that have been changing over the past 30 years. Systems which historically offered narrowly defined supports had the deleterious effect of pulling people from their communities and cultural traditions. These systems have seen an emerging shift to embrace person-centered principles. This change is premised on the belief that people should have the authority to define and pursue their own vision of a good life. Just as the US is diverse, the approaches that states, tribes, and territories take to adopt person-centered practices in disability systems vary. Although person-centered supports are generally accepted as best practice, their full realization has been hard to achieve despite decades of work by stakeholders; evidence supporting person-centered practices; guidance from federal agencies; and legislation. Recently the Centers for Medicare & Medicaid Services, however, issued regulations requiring person-centered planning and have identified person-centered planning as being an essential element of high-quality long-term services and supports program. As support systems work towards the full implementation of person-centered planning, they must be careful to respect cultural and linguistic needs so that a common definition of person-centeredness can be espoused. This definition, as well as the resulting formal planning practices, must dignify people s lived experiences within their communities and not impose any undue barriers on any group of people seeking supports. The National Center on Advancing Person Centered Practices and Systems (NCAPPS) is assisting states, tribes, and territories to transform their support systems and implement policy on person-centered thinking, planning, and practices. The center is seeking to do this in a way that recognizes the unique lens that people from a variety of cultural backgrounds bring to the picture. To this end, NCAPPS is working with a broad range of national partners as well as advocates with disabilities or other lived experiences. This presentation will involve an interactive discussion about the work of NCAPPS and the goals of responsibly promoting policies and practices that represent diverse needs and interests, some that may seem at odds with others. The NCAPPS team will present an overview current practice and key themes of NCAPPS work with states, describe the role of people with lived experience in the process, provide an overview of stakeholder engagement activities, and discuss how these various activities are guiding the Centers activities. The session will conclude with a facilitated discussion about how NCAPPS can better promote cultural and linguistic diversity through its work and navigate conflicts and barriers related to respecting diversity.

avatar for Jami Petner-Arrey

Jami Petner-Arrey

Policy Associate, HSRI
Talk to me about federal and state disability policies, services, and funding.

Saturday December 7, 2019 2:15pm - 3:05pm MST
Meeting Room: Ant 5594 West Wild Horse Pass Blvd., Phoenix, AZ 85226