2019 TASH Conference has ended
Each year, the TASH Conference brings together our constituents to share resources and success stories, learn about field-driven best practices, and network within a community engaged in shared values. The Conference is attended by passionate leaders, experts, and advocates from every corner of the disability community. Conference attendees are influential in their fields and communities, and play an important role in the provision of services and supports for the millions of individuals and organizations around the world; and include professors and researchers from leading institutions; those involved in local, state, and federal governments and public policy; special and general educators, and school administrators; self-advocates, adult service providers; students, family members, and many others.  This year’s conference theme, Building Diverse and Inclusive Communities, reminds us that equity, opportunity, and inclusion relies on the input of broad perspectives and experiences.
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Friday, December 6 • 10:55am - 11:45am
Navigating through the Complex Waters of HCBS Waivers: Learning from Successful Navigators and Charting New Frontiers Seating Available

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Limited Capacity seats available

Perhaps the most important U.S. public policy ever for "Building Diverse and Inclusive Communities" in regard to people with intellectual disability and related development disabilities occurred in 1981 when Congress authorized the Home and Community Based Services (HCBS) Waiver program. The HCBS Waiver provided an alternative to the Intermediate Care Facility (ICF) program (with its clear "institutional bias") by allowing Medicaid funds for Long Term Services and Supports to be spent supporting people to live in their local communities. It took until 2001 for HCBS spending to surpass ICF spending, but the latest figures show that spending for HCBS waivers (34.5 billion) is now more than three times that of the ICF program (11.0 billion). The growth of HCBS waivers does not mean that the path to accessing funding is easy or straightforward for people with disabilities or family members. Long waiting lists for HCBS waiver services (i.e., people wanting waivers exceeds the available supply) have been a perpetual problem, and the fact that states have their own rules and there are so many varieties of HCBS waivers adds to the complexity of accessing the services. This session will include two presentations on the HCBS waiver. Findings from in-depth interviews with 10 families who have successfully navigated the HCBS waiver process forms the basis for the first presentation. Themes from interview data will be shared, and guidance for families seeking HCBS waivers as well as recommendations for policymakers will be provided. The second presentation reports findings from focus group interviews to gather insights on assessment items that can be used to determine the number and type of supports that can be provided through HCBS waiver programs serving people with intellectual disability and related developmental disabilities compared to HCBS waiver programs serving people with aging-, physical-, and mental health-related disabilities. The similarities and differences in assessing support needs that were aligned with different disability populations has important implications for how disability is understood and establishing support priorities for different disability groups.

avatar for James Thompson

James Thompson

Professor, University of Kansas
James R. Thompson, Ph.D., serves as a Professor on the faculty of the Department of Special Education at the University of Kansas, Lawrence, KS, U.S. He is Editor of Intellectual and Developmental Disabilities and is a past-president of the American Association on Intellectual and... Read More →
avatar for Sarah Carlson

Sarah Carlson

Graduate Research Assistant / PhD Candidate, University of Kansas
I am a doctoral candidate in the Department of Special Education at the University of Kansas. Through my research, I seek to identify and understand factors influencing the post-school outcomes of adults with intellectual disability and their families. My research centers around understanding... Read More →

Friday December 6, 2019 10:55am - 11:45am MST
Meeting Room: Deer 5594 West Wild Horse Pass Blvd., Phoenix, AZ 85226