2019 TASH Conference has ended
Each year, the TASH Conference brings together our constituents to share resources and success stories, learn about field-driven best practices, and network within a community engaged in shared values. The Conference is attended by passionate leaders, experts, and advocates from every corner of the disability community. Conference attendees are influential in their fields and communities, and play an important role in the provision of services and supports for the millions of individuals and organizations around the world; and include professors and researchers from leading institutions; those involved in local, state, and federal governments and public policy; special and general educators, and school administrators; self-advocates, adult service providers; students, family members, and many others.  This year’s conference theme, Building Diverse and Inclusive Communities, reminds us that equity, opportunity, and inclusion relies on the input of broad perspectives and experiences.
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Friday, December 6 • 9:45am - 10:35am
Being Counted; and Making That Count Seating Available

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Limited Capacity seats available

Building diverse and inclusive communities means that federal and state agencies have robust information on the needs of people with intellectual and developmental disabilities (IDD). As long as people are not included and counted in national surveys, and administrative state data on their needs are not being analyzed, the needs of people with IDD will not be adequately addressed and equity will not be achieved. Health information is especially missing. This session describes recent efforts across HHS agencies, self-advocates, advocates, and researchers: a) to improve information on population health and health needs of people with IDD, b) to identify directions for future actions. Based on two white papers developed for the Administration for Community Living (ACL), the recommendations specifically recommend better information on race and ethnicity, and to improving data for the U.S. territories. Other directions include areas that need to be measured in health surveys to be able to identify people with IDD, examples of promising practices in using state level data to develop better local information. An Easy Read version of the white papers is available.

avatar for Alixe Bonardi

Alixe Bonardi

Director IDD Research, Human Services Research Institute
I work to improve supports for people by understanding, or measuring, how they are doing. This includes health surveillance, quality monitoring, and quality improvement. I Direct the National Core Indicators (NCI) at HSRI and am co-Director of the National Center for Advancing Person-Centered... Read More →

Friday December 6, 2019 9:45am - 10:35am MST
Meeting Room: Deer 5594 West Wild Horse Pass Blvd., Phoenix, AZ 85226