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2019 TASH Conference
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Each year, the TASH Conference brings together our constituents to share resources and success stories, learn about field-driven best practices, and network within a community engaged in shared values. The Conference is attended by passionate leaders, experts, and advocates from every corner of the disability community. Conference attendees are influential in their fields and communities, and play an important role in the provision of services and supports for the millions of individuals and organizations around the world; and include professors and researchers from leading institutions; those involved in local, state, and federal governments and public policy; special and general educators, and school administrators; self-advocates, adult service providers; students, family members, and many others.  This year’s conference theme, Building Diverse and Inclusive Communities, reminds us that equity, opportunity, and inclusion relies on the input of broad perspectives and experiences.

Friday, December 6 • 5:15pm - 6:30pm
Advocacy Strategies Utilized by Families of Children who are Deafblind

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Although active parent involvement is mandated as part of the Individuals with Disabilities Education Act (IDEA), parents continue to report dissatisfaction with IEP meetings. Despite increases in parent participation policy since the adoption of IDEA, the parent-professional partnership originally envisioned by lawmakers is arguably not consistent with practice. This is evident for families of all children who represent the thirteen disability categories covered under the auspice of IDEA; however, because of its uniqueness, this study focuses on families of children who are deafblind. Deafblindness is a low-incidence disability with a heterogenous population. Parents of children who are deafblind have unique challenges before, during, and after Individualized Education Program (IEP) meetings. Often there is a lack of professional knowledge about deafblindness, thereby requiring families to gain and share knowledge. Because parent knowledge and advocacy are essential roles, there is need to understand better how parents advocate and share knowledge during the IEP meeting. This study focused on parent-initiated strategies used to increase IEP team collaboration and to address their child's needs. Currently, there is a lack of research on IEP strategies initiated by parents of children who are deafblind. Further, there is sparse research on families of children who are deafblind overall. Thus, this study begins to fill a gap in the research literature.

Presenters
avatar for Lanya (Lane) McKittrick

Lanya (Lane) McKittrick

Research Analyst, Center on Reinventing Public Education
Family-Professional Partnerships, Deafblindness, Self-determination


Friday December 6, 2019 5:15pm - 6:30pm
Akimel Lawn 5594 West Wild Horse Pass Blvd., Phoenix, AZ 85226


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